Tag: prosthetic

LLLDAM Amputee Coalition

Number of People Living with Limb Loss and Limb Difference Continues to Grow

During Limb Loss and Limb Difference Awareness Month (LLLDAM), we recognize why research and understanding the number of people living with limb loss and limb difference is critical to supporting awareness, technological advancements, necessary funding, and resource allocation.

A recent study commissioned by the Amputee Coalition underscores the importance of understanding the prevalence and demographic characteristics of limb loss and limb difference. We uncovered why this research is so critical and how it can be leveraged for future innovation, policy change, and advocacy.

April is Limb Loss and Limb Difference Awareness Month (LLLDAM)

Limb loss and limb difference affects millions of people across the world. In recognition of LLLDAM, Hanger Clinic launched the #MyNextLevel24 campaign to empower people with limb loss and limb difference to embrace the “Next Level” in their lives.

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LLLDAM

Why is it important to know how many people live with limb loss and limb difference?

Knowing the number of people living with limb loss and limb difference is important for several reasons.

  1. Resource Allocation: Understanding the number of people living with limb loss and limb difference helps healthcare systems and policymakers allocate resources effectively. This includes funding for orthotic and prosthetic devices, rehabilitation services, and specialized healthcare providers.
  2. Healthcare Planning: Healthcare providers need accurate data to plan and deliver appropriate care and support services. This includes ensuring access to specialized care, rehabilitation services, and assistive devices for people with limb loss and limb difference.
  3. Research Prioritization: Knowing the prevalence of limb loss and limb difference can inform research priorities. Researchers can focus on understanding the causes, risk factors, and treatments to advance technology and therapies.
  4. Prevention and Early Intervention: Studies can shed light on the underlying causes of limb loss and limb difference, including risk factors such as diabetes, vascular disease, and trauma. This knowledge can help to establish preventive measures and early intervention strategies to lessen the occurrence or progression of these conditions.
  5. Advocacy and Awareness: Awareness of the number of people living with limb loss can help advocacy groups and organizations raise awareness of the challenges faced by individuals with limb loss. It can also help advocate for policies and programs that support their needs.
  6. Policy Development: Research findings on limb loss and limb difference can inform policymaking at the local, national, and international levels. This includes advocating for policies that support accessibility, affordability, and equity in healthcare services and assistive devices. Learn more about the So Everybody Can Move campaign and their work to change policy and increase coverage.
  7. Quality of Life: Knowing the prevalence of limb loss and limb difference helps society understand the scope of the issue and the physical, psychological, and social impacts on a person’s quality of life. This understanding can lead to increased empathy, support, and inclusion.

Amputee Coalition Commissions Prevalence Study

The Amputee Coalition’s newly commissioned study, Prevalence of Limb Loss and Limb Difference in the United States: Implications for Public Policy, has just been published. Through collaboration with Avalere, a US-based healthcare consulting firm, the Amputee Coalition conducted an analysis of insurance claims data to estimate the number of people currently living with limb loss and limb difference. This study highlights the importance of understanding the prevalence and demographic characteristics of limb loss and limb difference for effective healthcare, access to affordable assistive devices, rehabilitation programs, support services, and economic policy and programs.

Hanger’s Commitment to Research

In partnership with leading researchers and professionals, the Hanger Institute for Clinical Research and Education is dedicated to advancing clinical practice and improving patient outcomes through ongoing, leading-edge research, evidence-based care, and quality education. Research findings are continuously integrated into Hanger Clinic and shared throughout the orthotic and prosthetic community to improve patients’ quality of life.

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1. Amputee Coalition. Limb Loss and Limb Difference Awareness Month. Accessed April 1, 2024. 

LLLDAM 2024

Take It to the Next Level During Limb Loss and Limb Difference Awareness Month

Hanger Clinic is recognizing Limb Loss and Limb Difference Awareness Month (LLLDAM) by launching the #MyNextLevel24 campaign designed to empower people with limb loss or limb difference to embrace the “Next Level” in their life. Whether it’s a personal goal, career goal, or mental or physical health goal, Hanger Clinic is excited to support our staff, patients, and the limb loss and limb difference community at large in achieving new heights this year.

With millions of people living with limb loss and exponentially more at risk for amputation, chances are you will encounter someone who has faced or is facing this difficult journey.1 For many people living with limb loss or limb difference, the journey to rediscovering what’s possible is not always easy. The good news is that being fit with a prosthesis may help ease some of these challenges. Research shows that prosthetic care positively impacts quality of life, mobility, and satisfaction and can lead to a reduction in overall direct healthcare costs (up to nearly $100,000 if a prosthesis is received 0-3 months post-amputation).2,3 There are a variety of custom prosthetic solutions available through Hanger Clinic to help people with all levels of limb loss and limb difference achieve their goals and improve their outcomes.

Facts About Limb Loss

Discover more about the common causes of limb loss and limb difference, and opportunities to overcome challenges and embrace life.

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Limb Loss and Limb Difference: Facts, Statistics, & Resources

My Next Level 2024

The #MyNextLevel24 campaign kicked off on April 1, 2024, as part of the celebration of LLLDAM. Limb loss and limb difference affects millions of people across the world, including every socioeconomic status, race, gender, and age.

While limb loss is caused by external factors (most commonly due to vascular disease, trauma, and cancer), many people are born with a congenital limb difference. People living with limb loss and limb difference often face unique challenges, and #MyNextLevel24 is focused on celebrating our community members and the journey they take in striving to achieve their goals.

My Journey, My Pace, My Next Level

Throughout the month of April, members of the limb loss and limb difference community are encouraged to post photos and videos to their social media channels to celebrate their individual achievements, goals, and milestones using the hashtag using #MyNextLevel24 and #LLLDAM.

Additionally, there will be a challenge each Tuesday in April to keep the momentum going! Visit the #MyNextLevel2024 website to view the weekly April challenges and learn more.

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About Limb Loss and Limb Difference Awareness Month

The Amputee Coalition founded Limb Loss and Limb Difference Awareness Month in 2010 to help give the limb loss and limb difference community a platform and a voice. Throughout the month and all year long, the organization supports those with limb loss through numerous activities, resources, advocacy, and action.

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If you or someone you love is looking for personalized prosthetic care, get in touch with a board-certified prosthetist at a Hanger Clinic near you.

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References

1. Amputee Coalition. Limb Loss and Limb Difference Awareness Month. Accessed April 1, 2024. 2. Wurdeman, Shane R., et al. “Mobility Analysis of AmpuTees (MAAT I): Quality of Life and Satisfaction Are Strongly Related to Mobility for Patients with a Lower Limb Prosthesis.” Prosthetics and Orthotics International, vol. 42, no. 5, Oct. 2018, pp. 498–503. 3. Miller, Taavy A. MSPO, CPO; Paul, Rajib PhD; Forthofer, Melinda PhD; Wurdeman, Shane R. PhD Impact of Time to Receipt of Prosthesis on Total Healthcare Costs 12 Months Postamputation, American Journal of Physical Medicine & Rehabilitation, vol. 99, iss. 11, Nov. 2020, p. 1026. 

Zack Anglin

Man Born with Quadruple Limb Difference Makes History by Becoming a Pilot

Born in Nigeria with limb difference in his hands and feet, Zack was adopted at a young age by a caring family in Wisconsin. Little did they know he would one day make history as the world’s first licensed commercial pilot and flight instructor with quadruple limb difference.

Zack was born in Nigeria with limb difference in both hands and feet. At a young age, he was adopted by his parents in the United States and raised in Wisconsin.

“I was born a quadruple amputee, which means that I’m missing both my hands and feet. I grew up with 18 brothers and sisters, so I had to adapt. My mom told me I didn’t realize I was missing my hands and feet until I was eight because I was always trying to keep up with my siblings. We grew up on a farm. I watched my brothers and sisters climb trees, play football, and ride horses, and I thought I could sit and watch them or adapt and learn how to do it my way. I chose to join them.”

Zack’s passion to help himself and others came in part from his adoptive parents. His mother runs an orphanage in Liberia, and his dad is a sheriff, both helping other people better their lives.

Zack

“My love for flying started at a young age. I would ride in the truck with my dad and drive to the airport to pick up my mom, and I would see these big airplanes taking off and landing. I would ask my dad where the airplanes were going, and he would tell me they were bringing families together.”

It was then Zack decided he wanted to be a pilot. While no person with quadruple limb difference had ever held a commercial pilot role, he never stopped dreaming.

“I applied to multiple flight schools but kept getting told no. And then, I was finally told yes by the Spartan College of Aeronautics in Tulsa. They took a chance on me.”

But the battle to fly continued. Zack had to get permission from the Federal Aviation Administration (FAA) to take flying lessons. After five rejections, Zack finally received the approval he needed. His ingenuity and determination were boosted by the dedication of his Hanger Clinic prosthetist Scott Stromberg, CPO, who custom-fit Zack’s prostheses and ensured his devices worked perfectly in the cockpit. In 2019, Zack earned his FAA license.

“I am the world’s first quadruple amputee licensed commercial pilot and flight instructor. When I fly, I use things differently and must adapt. There are times when turbulence is bad, and I need to manage the plane appropriately. The fact that I can safely fulfill my dream is an incredible experience.”

Zack Anglin

Today, Zack is a husband and father and giving back to other students as a flight instructor at Spartan College.

“When I learned to fly, I had great instructors. Now, I get to be that person for my students and feel like I have a purpose. If I was able to overcome all the obstacles I faced to fly, they see the opportunities that lie ahead for themselves. I love to see their eyes light up as they pass their tests and check rides. The future is full of endless possibilities.”

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If you or someone you love are looking for personalized prosthetic care following amputation, get in touch with a board-certified prosthetist at a Hanger Clinic near you.

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AAOP

Hanger Clinic Celebrates 50 Years with AAOP

As we anticipate the American Academy of Orthotists & Prosthetists (AAOP) 50th Academy symposium, we reflect on Hanger Clinic’s partnership with AAOP and look forward to new opportunities to enrich the O&P profession and patient lives.

Since 1970, the AAOP has worked to advance the standards of O&P care through education, literature, research, advocacy, and collaboration. Throughout the last 50 years, Hanger Clinic clinicians have served in leadership roles and on councils and committees at the Academy to support research, education, and resource efforts.

Greg Armstrong, MBA, BSPO, CPO, FAAOP, at Hanger Clinic in Houston, Texas, is currently serving as one of the directors for the Academy.

Greg Armstrong shared, “The Academy is a premier source of education and research for the orthotic and prosthetic profession. It is an honor to be a valued member of a team dedicated to the field of O&P, both at Hanger Clinic and AAOP. As an O&P professional, you have the opportunity to change lives. AAOP helps provide us with the knowledge and resources to do that.”

Celebrating AAOP Presidents

Throughout the 50 years, past Academy presidents include Hanger Clinic current and past employees Tom DiBello, L/CO, FAAOP; Phil Stevens, MEd, CPO, FAAOP; Sarah Thomas, MSPO, CPO; Frank Bostock, CO, FAAOP; Ted Thrandardt, CPO; Mike Quigley, CPO; C Micheal Schuch, CPO, FAAOP, FISPO; and Bob Brown, CPO.

Past president and AAOP Lifetime Achievement Award recipient Tom DiBello shared, “Whether serving in a leadership role for AAOP, one of our sister organizations, or assisting in a volunteer mission abroad, throughout my career, the time that I have spent as a volunteer has always reaped so much knowledge and personal and professional satisfaction. Every one of us should actively participate in our national organizations, and the Academy in particular, for fostering our growth as a profession. If you have not joined or volunteered, you owe it to yourself, your colleagues, and your patients to do so. Happy 50th Academy, here’s hoping for fifty more.”

Hanger Clinic at AAOP

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Past president Phil Stevens also shared, “I’ve always enjoyed my interactions with the Academy.  It’s a unique collection of passionate clinicians and staff motivated to facilitate the best care for the patients we’re fortunate enough to care for.  It’s also proven to be an excellent resource for translating our research findings to the broader O&P community.”

AAOP2024 Symposium

The Academy Annual Meeting and Scientific Symposium serves as the nucleus of O&P continuing education, community, and connection. Thousands of O&P practitioners, academicians, researchers, and industry partners gather to explore and collaborate in an enriching, inclusive, and interactive environment.

This year’s annual symposium will take place in Chicago, Illinois, on March 6-9, 2024. Hanger Clinic will be participating in many educational sessions throughout the event, supporting the continued evolution and progress in O&P.

More Published Research

The Hanger Institute for Clinical Research and Education conducts studies in collaboration with leading researchers, clinicians, and academic institutions.

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Katie Bondy Blog

Katie Stays Active and Inspires Her Students While Living with Spina Bifida

Born with several conditions, including spina bifida, Katie Bondy grew up with lower limb orthoses, and later a prosthesis. Never letting her differences hold her back, Katie has always been extremely active and participated in many sports. Following her love of the game, Katie became a high school lacrosse coach and science teacher, inspiring her players and students to always follow their dreams.

Growing Up with Orthoses

Katie was born with several conditions, including spina bifida, scoliosis, a tethered spinal cord, and limb-length discrepancy. At two years old, Katie was fit with her first orthosis on her left leg, and then was later fit with an orthotic brace on her right leg, too. She learned to walk with casts, a walker, and an orthosis. To assist her mobility, Katie had over 20 surgeries that started at a young age. She was determined to never let her differences hold her back.

“When I was younger, my doctors told my parents I shouldn’t be able to walk, but I was determined. Using my orthotic braces and assistive devices, I tried to keep up with the other kids. To help with my leg length discrepancy, I also wore a shoe with a lift. When I fell, my parents let me figure out how to get up on my own. This helped form my attitude to just get up and keep going.

As I continued to grow, I knew I wanted to stay active and play sports. I played lacrosse throughout high school and college. I wore two leg braces while I played, and had a variety of orthoses, from a knee-ankle-foot orthosis to my current reactive ankle-foot orthosis.”

Katie Bondy TBall

School

Katie’s parents decided when she was young that they were going to teach her to advocate for herself and go for her dreams.

“I feel very fortunate for how my parents raised me, not everyone has that experience. My parents were proactive when I was introduced to new situations, such as when I started to attend school. Starting in kindergarten, my parents met with the teachers before school began. When the school year started, I introduced myself, told the other students about my leg braces and that I needed to wear them to help me walk. Once they knew I could play like them, we were off and running.

Back to School Guide

Keep these back to school tips easily accessible as you start the new school year.

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Back to School Prosthetic and Orthotic Tips

By middle school and high school, I advocated for myself with my teachers and had established my group of friends. If people asked me about my leg braces, my friends would even answer saying, ‘This is Katie, she walks different, she’s really just like you and me.’ Our school was multiple levels, and our day was based on a block schedule. I would meet with the school staff to get as many of my classes as possible on the main floor before having my classes on the second floor to minimize going up and down stairs throughout the day.

When it came to sports, I didn’t run as much as everyone else, but then I would modify with more push-ups, sit-ups, and other exercises. This really helped me in my position as goalie on our high school lacrosse team.”

Relationship with Hanger Clinic

“The relationship I have with Hanger Clinic in Columbus, Ohio is amazing. I work with prosthetist Jason Macedonia, L/CPO and orthotist Makenzie Best, L/CPO. They have always been there for me. When I was in high school, they worked with my school schedule to get me in for appointments. There were times when I needed an adjustment or quick fix right before my game, and they were there to support me and help me get out on the field. Jason even came to my soccer practice to get a better understanding of how my prosthesis was working for me on the field and if any adjustments might help. As an adaptive athlete, I don’t take for granted that I have a prosthetic and orthotic device that is fit just for me. The relationship I have with the Hanger Clinic team helps enable me to be mobile and live.”

Katie Bonde

Life Today

In 2022, Katie’s left leg was amputated below the knee after developing a staph infection.

“It was scary, but I had seen other people with prostheses playing sports and living an active life. In the end, it turned out to be a blessing. The prosthetic foot has more movement than my ankle-foot orthosis allowed me, I can walk better without my leg length difference, and my back pain has improved.”

Less than a year later, Katie began playing soccer with an amputee soccer club.

“I’ve always been an athlete. In addition to playing sports in high school and college, I’ve enjoyed hiking, rock climbing, boating, and coaching soccer and lacrosse. Now, I’m really enjoying playing adaptive soccer, even getting the opportunity to represent the United States on the U.S. Women’s National Amputee Soccer Team.”

Katie is also a high school teacher.

“In addition to coaching, I teach high schoolers. My service dog, Ollie, is my German Shepard and attends class with me. I’m very open with my students about my orthosis and prosthesis, and why I walk different. As kids, we are taught not to stare, but I feel like students are just trying to figure it out. It may be something new that they have never seen before.

Katie Bondy Soccer

Most often, they are just curious about why I have a prothesis, then after that, the curiosity is gone and I’m just another teacher at school. It’s a good lesson for my students in overcoming struggles to accomplish your goals.

For me, it’s a lot about mindset. According to my chart, I should be wheelchair bound. But I am walking, teaching, playing sports, and living an active life. Instead of looking at all the things that are harder in my life, I focus on everything I am able to do and enjoy just being alive. It’s not always easy, but I make each day the best day it can be.”

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If you or someone you love are looking for personalized orthotic or prosthetic care, get in touch with a board-certified orthotist/prosthetist at a Hanger Clinic near you.

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Hope Running Blade

Santa Delivers Holiday Surprise to 6-Year-Old Amputee Advocate

Hope was born without her right leg at the hip and has been using a prosthesis since she was 18 months old.  This special 7-year-old testified to help pass House Bill 131 in New Mexico to make prosthetics and orthotics designed for physical activity more affordable by requiring New Mexico insurance companies to help pay for the cost of a second device. This Christmas, Hope received an extra special surprise – a running blade.

Hope’s Hanger Clinic prosthetist Gabe Brodehl, CPO, shared, “Individuals who have limb loss often suffer from not being able to have great mobility outcomes because of limitations with insurance – either their insurance has no coverage, their coverage is such that it is a high out-of-pocket cost, or the insurance deems that some devices are not medically necessary. An individual then must decide if they want to pay the out-of-pocket cost so they can have a specialized prosthetic or orthotic device that they need for physical activity.

In Hope’s case, her everyday prosthesis is made for walking and is not designed for running. This bill can help kids like Hope who need specialized devices for specific activities that enable them to grow in their level of motion.”

Christmas Surprise

During a recent visit to Hanger Clinic in Rio Rancho, New Mexico, Santa Claus (otherwise known as Doug Wacker, CPO) made a special appearance and surprised Hope at her appointment. Her wish? A running blade for Christmas.

“I want a running leg so I can catch up with my friends at school … and so I can run fast with my friends,” Hope said. 

Thanks to local efforts and the Timothy J. Piazza Memorial Foundation, Hope received her special Christmas wish this year. She is thankful and excited to start using her running blade.

How to Get Involved

So Every BODY Can Move (formerly known as “So Kids Can Move”) is an initiative to provide greater access to specialized orthotic and prosthetic care used for physical activity. The initiative outlines the need for insurance coverage of medically necessary prosthetic limbs and custom orthotic braces designed to enable individuals with limb loss and limb difference to participate in exercise, recreation, and physical activities. Whether it’s coalition-building, legislative drafting, or contacting policymakers, So Every BODY Can Move has the resources and opportunities to get involved to make your voice heard.

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If you or someone you love are looking for personalized orthotic or prosthetic care, get in touch with a board-certified orthotist/prosthetist at a Hanger Clinic near you.

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Tips for a Safe Winter with Your Lower Limb Prosthesis

Winter is upon us. If you live in areas with ice and freezing temperatures, navigating these conditions can be challenging, especially if you use a lower limb prosthesis. Here are seven tips to help you stay safe this winter.

Winter Safety Tips

1. Be Aware of Weather Conditions

Staying aware of weather changes is your first line of defense. This can help you appropriately prepare for elements you may encounter while outdoors. Additionally, different weather conditions may result in different snow environments. For example, on slick, tightly packed snow, you may need to carefully distribute your weight between heel and toe and use additional traction devices to keep a good, firm base beneath your feet for balance. In deep snow, you may need to lift your legs with each step to avoid a fall.

2. Be Cautious on Slippery and Treated Surfaces

One of the biggest winter hazards is unsafe walking conditions. Snow and ice make surfaces slippery, increasing the risk of falling. Additionally, if a surface has been treated with sand or salt to remove the snow and ice, it can cause instability and throw off your balance. Be sure to assess walking paths and proceed slowly.

3. Use Appropriate Winter Footwear and Clothing

It is important to wear appropriate footwear with traction. Consider slip-on cleats or grips for shoes, cleats for prostheses, and spiked bottoms for canes or crutches.

Often, we wear boots on cold winter days, which may have thicker soles than traditional shoes. If your alignment feels off or you experience pain or balance issues with this change in footwear, contact your prosthetist.

Be sure to wear layers of clothing to keep your body warm. Take caution with any additional clothing that could cause you to trip.

4. Use Supportive Devices When Needed

While you may have confidence walking and moving with your prosthesis during optimal weather conditions, using an assistive device during poor weather conditions can help prevent a fall. It may be beneficial to use a cane, crutch, walker, or walking sticks for added balance and stabilization.

Additionally, use handrails or help from family and friends when available. If you typically carry a purse or tote, consider a backpack or crossbody style to free up your hands for balance and safety.

5. Stay Warm During Cold Temperatures

Just as heat can cause swelling in the summer, cold temperatures can cause limb shrinkage in the winter. Staying warm in winter can help keep your prosthesis fitting its best. If you do notice limb shrinkage, consider adjusting or adding sock ply as needed.

Additionally, cold temperatures can cause increased stiffness and pain, which may alter your comfort and range of motion and increase the possibility of a fall.

6. Know What to Do If You Fall

It is important to learn the best and safest way to recover on your own from an unexpected fall. If you fall, assess yourself for any pain, then roll onto your stomach and use your hands and forearms to support yourself to a standing position. Also, be sure to charge your cell phone and have it with you in case you need assistance.

7. Keep Outdoor Areas Clear of Snow and Ice

At home and on the go, inspect walkways, steps, hills, and ramps before walking on them. If needed, get help clearing your walkway area at home. If a pathway looks dangerous, consider selecting an alternative route.

While it is important to take caution, we also encourage you to enjoy the winter activities you love. If you have any questions about participating in winter activities with your prosthesis, please reach out to your local Hanger Clinic prosthetist.

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If you or someone you love is looking for personalized prosthetic care, get in touch with a board-certified prosthetist at a Hanger Clinic near you.

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Thundergong

Steps of Faith Helps Provide Limbs to Amputees

Steps of Faith reconnects amputees to their communities, families, and workforces by providing limbs to amputees who can’t otherwise afford them. Thundergong, Steps of Faith’s annual fundraiser, is a night of unforgettable musical performances and loads of laughs as all come together to help uninsured and underinsured amputees get the prosthetic limbs they need to restore mobility. This year, Hanger Clinic was proud to be the headline sponsor.

Thundergong 2023

This year’s annual event was a huge success! Thundergong 2023 had incredible performances including Shallow and Love Shack from Hannah Waddingham, Jason Sudeikis, Brendan Hunt, and more. Our favorite moment was when Meri Bennett from Kansas City took the stage with her Hanger Clinic prosthetist Ashley Eaton, CPO.

Ashley first met Meri in February, the day after she underwent an above-knee amputation resulting from complications during surgery to remove a blood clot from behind her knee. Not only was Meri dealing with a major, unexpected medical event, her insurance lapsed when she was unable to work, leaving her without coverage for her much-needed prosthesis.

Meri shared, “I cried to Ashley. I told her I really don’t know what to do or where to turn.”

That was when Meri turned to Steps of Faith, a nonprofit dedicated to providing prosthetic care to those in need. Ashley and Meri filled out an application, and within weeks, Meri had been approved and was fit with her first prosthetic leg. She is now able to walk again, is continuing to improve her mobility, and plans to travel to Mexico to celebrate her 40th birthday. When Meri spoke at Thundergong, it was with a mission to bring awareness through her story, inspire others like her, and recognize the work of Steps of Faith.

“I never thought I would lose a leg or be in this position. When I see other amputees living their lives, it encouraged me. So, I want to do the same thing for other people. You never know how you can be a blessing.”

Thundergong

The Hanger Clinic Kansas City team was cheering on Meri and Ashley from the audience. The Hanger Clinic team is incredibly proud of Meri and Ashley, glad to support Thundergong as its headlining sponsor, and happy to partner with Steps of Faith throughout the year to help change lives. 

Steps of Faith

Steps of Faith is a nonprofit public charity founded in 2013 dedicated to providing prosthetic care, hope, and comfort to amputees needing financial support. They help uninsured and underinsured amputees get the prosthetic limbs they need. Sign up for emails to be first in the know for next year’s Thundergong event: thundergong.org/signup.

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If you or someone you love are looking for personalized prosthetic care, get in touch with a board-certified prosthetist at a Hanger Clinic near you.

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